Tom pursued blood tests and had a surprising result, no lyme but leptospirosis. He is being treated for that now, and the doctor said there were encouraging results with lowered muscle (something) readings in the blood. That means there is a slowing in the muscle atrophy.
That is the only light we have, but any hope is good hope so we'll take it. You do what you need to to feel pro-active in your life. Each day is all any of us have at any given moment, do your best with it, I'm trying too.