Sorry you are going through this nasty condition, Becky. I cannot imagine how awful it must be having nausea so much. It's so debilitating both physically and mentally.
What can they do about it ? Sounds ominous you getting your affairs in order!
Aly
They gave me a suppository for nausea, but it doesn't do anything for the other stuff. Basically a meal puts me in many hours of pain, I don't get all of it's calories, and oral meds get stuck behind it in line. Liquid stays down very poorly, even after a 12 hour fast, just a cup of water can regurgitate. So I'm starving really slowly, and I'm constantly dehydrated.
I'm hoping not to do anything melodramatic, but if they force me to wait till I'm emaciated and super progressed in the PLS for a feeding tube, I'm not promising I'll take one then. I figure when they cry uncle on the tube, I'll evaluate where I'm at and decide. But my diabetes doesn't like what my diet is doing at all, I'm starting to swing around, and in general decline. So I did up a living will and health care proxies and all, just to have the paperwork done. My family is all on page with me and each other, and it frees me of worry on those points.
In the meantime, there's a health advocate on my case, and someone bothering the local politicians, so if there's a way for me to stay workably healthy, I'll find out for sure. But I'm just taking it day by day, balancing lack of food and sleep (food takes away sleep), balancing food/sleep vs blood sugar, and not doing anything ridiculously torturous. The anti-nausea drug kills my ability to use pain killers, so I look at whether the nausea or pain is worse, and what my 6 hour outlook seems to be.
It's all really slow, mostly just crazily uncomfortable, so don't expect me to disappear anytime soon.