Graham T
Member
- Joined
- Nov 12, 2010
- Messages
- 18
- Reason
- PALS
- Diagnosis
- 10/2008
- Country
- UK
- State
- England
- City
- Bolton
Hi,
I have had MND since Jan 2008, diagnosed May 2010. I have had MRI scans, CT scans, 2 spinal taps. Docs gave original diagnosed as PLS but now with ALS. I am psuedo-bulbar, all limbs affected with severe emotional labiety, but am of sound mind.
I have told my doctors over the past 2 years that I have seen incremental improvements in my worst affected parts however they do dismiss my assertions as misunderstandings on my part. However I would say that they have missed the details in past clinics. My overall presentation has declined over the past 12 months but is stabilising and I hope for the improvements to shine through over the next two years.
Tests have shown my lungs have strengthened and over the past 2 weeks my voice-box is tightening and voice projection is improving.
A more detailed account is on the UK MND forum, 'I am with you'.
I am curious if anyone else had noticed any slight improvements?
Regards
Graham
I have had MND since Jan 2008, diagnosed May 2010. I have had MRI scans, CT scans, 2 spinal taps. Docs gave original diagnosed as PLS but now with ALS. I am psuedo-bulbar, all limbs affected with severe emotional labiety, but am of sound mind.
I have told my doctors over the past 2 years that I have seen incremental improvements in my worst affected parts however they do dismiss my assertions as misunderstandings on my part. However I would say that they have missed the details in past clinics. My overall presentation has declined over the past 12 months but is stabilising and I hope for the improvements to shine through over the next two years.
Tests have shown my lungs have strengthened and over the past 2 weeks my voice-box is tightening and voice projection is improving.
A more detailed account is on the UK MND forum, 'I am with you'.
I am curious if anyone else had noticed any slight improvements?
Regards
Graham