Mike27
Distinguished member
- Joined
- Apr 19, 2005
- Messages
- 280
- Diagnosis
- 10/1993
- Country
- CA
- State
- Alberta
- City
- Edmonton
Hi folks,
Here's a tip that has worked for me a number of times. Purchase a small wallet with lots of those clear plastic credit card flaps. Then get some blank business cards from Staples or some other stationary store.
Sit at your computer and come up different common phrases you might use day-to-day or emergency contacts etc. Print them out and stick 'em in the wallet and you have a homemade communication device for under $50.
This has reduced a tremendous amount stress on me, if I happen to go out on my own, worrying that people may not understand me. If I go to Tim Horton's for a java, I just whip out the card asking for a double double. (My American brothers and sisters may not know: that's 2 cream, 2 sugar-not 2 minor penalties in hockey):wink:
Some other phrases I use is asking where the washroom is/what kind of haircut I want/favourite meal at a restaurant, that kind of thing. I usually start the phrase with “I have ALS which affects my voice...” I also have a couple of cards for emergencies explaining my condition and who to contact, in case I get in trouble of some sort.
Hope you find this useful!
Here's a tip that has worked for me a number of times. Purchase a small wallet with lots of those clear plastic credit card flaps. Then get some blank business cards from Staples or some other stationary store.
Sit at your computer and come up different common phrases you might use day-to-day or emergency contacts etc. Print them out and stick 'em in the wallet and you have a homemade communication device for under $50.
This has reduced a tremendous amount stress on me, if I happen to go out on my own, worrying that people may not understand me. If I go to Tim Horton's for a java, I just whip out the card asking for a double double. (My American brothers and sisters may not know: that's 2 cream, 2 sugar-not 2 minor penalties in hockey):wink:
Some other phrases I use is asking where the washroom is/what kind of haircut I want/favourite meal at a restaurant, that kind of thing. I usually start the phrase with “I have ALS which affects my voice...” I also have a couple of cards for emergencies explaining my condition and who to contact, in case I get in trouble of some sort.
Hope you find this useful!