View Single Post
Old 12-13-2003, 03:19 AM #2 (permalink)
johnnyd's Avatar
johnnyd johnnyd is offline
New Member
 
Join Date: 2003
Posts: 43
johnnyd is an unknown quantity at this point
johnnyd johnnyd is offline
New Member
johnnyd's Avatar
Join Date: 2003
Posts: 43
johnnyd is an unknown quantity at this point
Default there is none

hi winobertie

I have had this same problem for over 3 years. It really sucks. I wake up my wife all the time to turn me. I feel bad cause i constantly disturb her sleep. I can't breathe either on my back. However, I have been sleeping with a bipap mask. which allows me to sleep for periods on my back. But I can't stay in one position due to pain on my hips or legs or arms. there is no muscle tissue, so the pain comes often until I am moved to another position. I have only little movement of my neck. Once a week my wife has a care person stay overnight so she can get a solid night sleep. But clearly, that is not enough; . I use the computer with the movement of my head. I have no speaking ability other than my laptop. And to use it i have to be sat up and balanced with pillows. Thank goodness for technology to keep my mind occupied via e-mail and surfing the web.
I am tired of this life.
but these are the cards we've been dealt.

John

Last edited by David : 03-08-2006 at 02:53 AM
johnnyd is offline