Northern Dancer
Distinguished member
- Joined
- Jan 30, 2010
- Messages
- 218
- Reason
- DX UMND/PLS
- Diagnosis
- 01/2010
- Country
- CA
- State
- Quebec
- City
- Montreal
I had an EMG a month ago. My family doctor had referred me to a neurologist because she was concerned with some unexplained falls which resulted in fractures.
I knew that I had become more clumsy (and I seemed to have less balance walking in the dark) but I attributed that to having shattered my kneecap a few years earlier.
As soon as the test was completed the neurologist said that I have PLS. The results apparently were definitive and yet on these forums people seem to say that an EMG doesn't actually diagnose PLS. It sounds as if PLS is only diagnosed by excluding other diagnoses.
I had a normal MRI about 5 months earlier and I must say that I thought that was the end of it. The EMG was only to tie up loose ends, I thought. I was totally surprised when this diagnosis was made. Is my left leg weak or is it because of the severe fracture I'd had?
My question is - how could I not have realised this before? or could this be a simple misdiagnosis? I go back to the neuro clinic in a week to see a multidisciplinary team and get another blood test for Lyme disease.
Since the diagnosis I have swung between noticing symptoms that I have never felt before and then feeling that absolutely nothing is wrong with me!
I knew that I had become more clumsy (and I seemed to have less balance walking in the dark) but I attributed that to having shattered my kneecap a few years earlier.
As soon as the test was completed the neurologist said that I have PLS. The results apparently were definitive and yet on these forums people seem to say that an EMG doesn't actually diagnose PLS. It sounds as if PLS is only diagnosed by excluding other diagnoses.
I had a normal MRI about 5 months earlier and I must say that I thought that was the end of it. The EMG was only to tie up loose ends, I thought. I was totally surprised when this diagnosis was made. Is my left leg weak or is it because of the severe fracture I'd had?
My question is - how could I not have realised this before? or could this be a simple misdiagnosis? I go back to the neuro clinic in a week to see a multidisciplinary team and get another blood test for Lyme disease.
Since the diagnosis I have swung between noticing symptoms that I have never felt before and then feeling that absolutely nothing is wrong with me!