paula B
Active member
- Joined
- Jul 23, 2006
- Messages
- 88
- Reason
- PALS
- Country
- US
- State
- wisconsin
- City
- seymour
Since day 1 of getting diagnosed my world has changed. I went from driving semi truck to not driving. Everyday it seems i have people asking me,,can i do anything for you or get you anything? Do ya need this or need that? Please dont get me wrong. Its not that i didnt or dont appreciate everyone in my life,,its just i felt like everyone was trying to disable me to soon. Like they were trying to do for me what i could still do and what i wanted to do. Let me have my independence as long as possible.
Well now i am pretty much dependant on someone else for everything and it really makes me feel blue. I want my yesterdays back.
I recently got power chair and van with ramp.
The other night my sister and sister inlaw came and took me in the van to go shopping.
I dont know if its just me or if every als person feels this way,,but when i am around family and friends i feel like someone is always watching me. I almost feel like im on display and i dont like it one bit.
Ok so we get to the store,,,,the van door opens,,the ramp folds down,,i say to my sister and sister inlaw,,Do not follow me and away i went. I was totaly gone from them befor they even got the ramp and door closed.
So im in the store i am going here then over there looking at this then that. It was incredible. If i saw something i just stopped and looked. There were times i just drove the chair around up and down the aisles and around the store from one end to the other. The indepenence i longed for was back. I didnt have to say i wanna look at this or stop here. I just went. I felt so free so normal.
My sister and sisterinlaw said when we got back in van,,we couldnt have followed you anyways,,,they couldnt keep up. They did say they saw me a few times and that i had the biggest smile on my face each and everytime.
I must say,,,shopping at Kmart never made me feel so good before. Its a day i wont soon forget. It was the first day of the rest of my life.
My wish is for everyone to feel the way i did that day.
PaulaB
Well now i am pretty much dependant on someone else for everything and it really makes me feel blue. I want my yesterdays back.
I recently got power chair and van with ramp.
The other night my sister and sister inlaw came and took me in the van to go shopping.
I dont know if its just me or if every als person feels this way,,but when i am around family and friends i feel like someone is always watching me. I almost feel like im on display and i dont like it one bit.
Ok so we get to the store,,,,the van door opens,,the ramp folds down,,i say to my sister and sister inlaw,,Do not follow me and away i went. I was totaly gone from them befor they even got the ramp and door closed.
So im in the store i am going here then over there looking at this then that. It was incredible. If i saw something i just stopped and looked. There were times i just drove the chair around up and down the aisles and around the store from one end to the other. The indepenence i longed for was back. I didnt have to say i wanna look at this or stop here. I just went. I felt so free so normal.
My sister and sisterinlaw said when we got back in van,,we couldnt have followed you anyways,,,they couldnt keep up. They did say they saw me a few times and that i had the biggest smile on my face each and everytime.
I must say,,,shopping at Kmart never made me feel so good before. Its a day i wont soon forget. It was the first day of the rest of my life.
My wish is for everyone to feel the way i did that day.
PaulaB