Willow
Distinguished member
- Joined
- Dec 28, 2006
- Messages
- 102
- Reason
- DX MND
- Diagnosis
- 04/2012
- Country
- CA
- State
- East Coast
- City
- NA
I wonder if I may ask your thoughts on this procedure.
I have an appt. soon in regards to booking this. I have to admit every ounce of my being is saying no so I really need some convincing that this test could. can, will or may produce some results. I have far too many vivid memories as a child, of my mother having several of these. They are for certain influencing my decision right now.
Just to keep you up to date; I am NOT diagnosed with ALS. It has been four long years of tests and doctors but right now we are hopefully looking at some sort of lumbosacral plexopathy...they will be able to say for certain after an MRI with contrast....if this is also negative, then we are looking at a lower motor neuron disease.
My neurologist is requesting I have the LP in addition to the MRI regardless of the MRI results. The MRI is not booked yet and could be some more months, we are right now at 6 months since the neurologists request.
As I said earlier...this is a test that I really do NOT want to have and truly see no purpose in doing. From my understanding this test MAY only show if there is a process taking place that is inflamatory. Having jumped through so may hoops prior to this...I really doubt this is nescessary or would be helpful.
Thanks for any insight you may offer, I really would and do appreciat any insight you may have very much. I don't post often so it is easy to look up my posts and see how I came to be here...no great saga or anything.
Thanks;
Willow
I have an appt. soon in regards to booking this. I have to admit every ounce of my being is saying no so I really need some convincing that this test could. can, will or may produce some results. I have far too many vivid memories as a child, of my mother having several of these. They are for certain influencing my decision right now.
Just to keep you up to date; I am NOT diagnosed with ALS. It has been four long years of tests and doctors but right now we are hopefully looking at some sort of lumbosacral plexopathy...they will be able to say for certain after an MRI with contrast....if this is also negative, then we are looking at a lower motor neuron disease.
My neurologist is requesting I have the LP in addition to the MRI regardless of the MRI results. The MRI is not booked yet and could be some more months, we are right now at 6 months since the neurologists request.
As I said earlier...this is a test that I really do NOT want to have and truly see no purpose in doing. From my understanding this test MAY only show if there is a process taking place that is inflamatory. Having jumped through so may hoops prior to this...I really doubt this is nescessary or would be helpful.
Thanks for any insight you may offer, I really would and do appreciat any insight you may have very much. I don't post often so it is easy to look up my posts and see how I came to be here...no great saga or anything.
Thanks;
Willow