wheeler641
Distinguished member
- Joined
- Oct 19, 2008
- Messages
- 196
- Country
- US
- State
- indiana
- City
- dyer
hi, everyone, I don't post often but read the forum almost everyday. I keep hoping to find someone with symptoms the same as mine. I joined the forum over a year ago and have had some progression of my symptoms, but very slow. I have been tested for just about everything, the one test that did come back positive was the one for lyme, I have taken 2 rounds of doxy thus far. The last emg I have had was over 3 years ago and it was negative. I saw my primary care doctor on monday and told him of my progressive numbness in my feet and left hand, he tested my refexes and said they were hyper. He is sending me for another emg but not for als to r/o nueropathy, also ct scan of the hip and spine, I cannot have an mri, as I have titanium in my right hip from a car accident 7 years ago, my entire hip was crushed. now my questions, I know als is not sensory in nature, so I really do not think I have als, nor am I obsessed with having it. I stayed on this forum because I felt comfortable here and also that this is about the greatest, most compassionate people I ever had the fortune to interact with. My symptoms probably go back as far as 5 years, when it first felt like my legs were heavy, it has progressed from numbness in my left toes, to numbness in both feet going up to my ankles. It also feels like the padding under my feet is vanishing, if thats possible. I have cramps in my toes, ankles and if I cough I sometimes get cramps in my abdomen. I have both low vitamin D and magnesium, this has since been corrected, however no change in the cramping, have some twitching, but think it is just related to stress. I also have some numbness in my left hand between my pinky finger and the next one over. My sed rate has been as high as 148, it is now holding at around 40 with 20 mg of prednisone a day. My synptoms are very similiar to kims(zaphoon), was diagnosed with polymyalgia rhhematica but the rhuematologist does not think I have it. My feet feel like the have socks on all the time and that my skin is somehow stretching, they are not swollen and my vitamin b is fine. Just wondering if anyone could me any insight on any of this. Oh, one more thing, whenever my doctor does a test for syphliss it comes back positive, but then when it is repeated with a more sensitive test is comes back negative. My doctor tells me that this a sign of an anti-immune response? I am a type 2 diabetic but right now it is well controlled with oral medications. Anyone have any insight?, thanks margaret