Lark2
Member
- Joined
- Nov 13, 2009
- Messages
- 21
- Reason
- Learn about ALS
- Country
- US
- State
- NY
- City
- holbrook
Hello to all - this is my first time posting although I have been on here for sometime - never wanted to post because of fasics but I seem to be having additional concerns now.I just want to say to everyone that is dealing with this disease that my heart goes out to all of you and i am awed by your positive attitudes (AL, JOEL, ROSE,CINDY and many others!- I really never knew about this disease till i started with fasics in aug 09 after a kidney stone in June and dizzy spell with blurred vision that sent me to the er one night in July.After clear ct scans.Mri and Mra - my neuro told me no neurological problems found - so off I went,but still didnt feel right - started with the fasics in my calves around Aug 23 and also have them in my thighs but not as intense as calves - went back to neuro in late Sept - told me most likely benign but too soon for emg - Around oct I started having pain in my Left buttock and fasics but waited till Dec to return to neuro - told him my concerns - sent me for lumbar mri and scheduled emg for Mid december - Mri showed compressed disc at L5 and emg on both legs,lower back,left buttock and rt hand. fasics noted in calf and thigh but otherwise emg was clean - He said no ALS and the buttock pain was coming from nerves or sciatica.Well 3 wks later I still have the buttock pain and now have pain in my groin when sitting - feels like the skin is being stretched and i noticed a lot of loose skin on both upper thighs around groin -buttocks appear normal but not as toned and feels like I lost muscle here. Has anyone ever heard of atrophy in both inner thighs and buttocks as a starting point? Could the emg have missed something or maybe the right muscles were not tested?My neuro did the emg himself and said denervation would have shown up everywhere...Not sure which way to go with this - could something else be causing this? I know your not doctors - just looking for advice - getting very scared from all this! Any input appreciated...thank you all..............Larry