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Welcome to the ALS/MND Support Group Forums.

If this is your first visit we would like to give you a warm welcome and thank you for taking the time to browse our ALS/MND/PLS and Lou Gehrig disease forums. If you have any questions, would like to join, or have interest about these diseases we encourage you to get involved.

How do I contact members?
Before you are able to participate in the conversations you will need to register for a forum account. Accounts are completely free and signing up takes less than five minutes. You will need a registered email account, we apologize if this is an inconvenience be we have had problems in the past when our forum allowed annonymous posts.

What does this website do? provides a free service in the form of this Internet support group. Our community consists of individuals working together to exchange information, and to offer moral support. We encourage you to join our community to learn about motor neuron disease, or to share your experiences with motor neuron disease (ALS/MND and PLS).

To view messages select the forum you would like to visit from the links below. If you prefer to search for ALS/MND/Lou Gehrig Disease information you can click the 'Search' link above, or click here.

  Forum Last Post Threads Posts
ALS and MND Support Group
Our support group is for ALL persons that have been affected by amyotrophic lateral sclerosis and motor neuron disease. This includes people afflicted with motor neuron disease, their friends, families, and loved ones. ALSforums is a community where you can ask questions, discuss concerns, voice your thoughts and experiences.
Please use this forum for any general discussions about Lou Gehrig disease, and inquiries or questions you may have regarding ALS/MND.
by Atsugi
Today 11:14 PM
6,786 75,385
Newly Diagnosed (12 Viewing)
Please use this forum for any discussions related to being newly diagnosed with ALS and MND. This may include questions about your diagnosis, or concerns with being newly diagnosed with ALS.
by nebrhahe53
Today 11:26 PM
275 4,340
Have symptoms? Not sure if you have ALS, or what ALS is? Would you like to ask a general question about ALS symptoms? Please post all related questions to this forum.
by shawnh
Today 07:36 PM
4,755 55,526
This forum was created to give individuals with ALS an opportunity to meet and discuss topics of interest. Individuals recently diagnosed with ALS can feel free to ask other members questions they may have.
by davbo49
Today 07:12 PM
2,060 29,930
ALS that runs in the family is known as familial ALS (or fALS). ALS that doesnít run in families is called sporadic ALS. Familial ALS is very rare with only about one in ten of all ALS cases being familial.
by Gembead
12-12-2014 05:51 PM
28 232
Stories of Hope (13 Viewing)
Please place your stories of hope, and reasons to look forward to the future in this forum. Much of what we read about ALS is sad and depressing, this forum is not the place for those threads.
by vickim
Today 10:30 AM
384 7,078
ALS Tips, Tricks, and Gadgets you have found useful for people affected by ALS/MND. Post items that you have invented, adapted, found or made usable for PALS.
by Jeffreyp
Today 03:33 PM
514 4,793
ALS Research News (11 Viewing)
Post and read about interesting ALS related research news. Keep everyone updated, post your updates about Lou Gehrig's disease and ALS research news.
by Gembead
Today 06:17 PM
521 4,227
ALS Drug Trials (6 Viewing)
Modern medicine is making great leaps and bounds; if you have any information about recent drug trials, clinical trials, post the information here. Drug trials and clinical trials are conducted to allow safety and efficacy data to be collected for health interventions (e.g., drugs, devices, therapy protocols, etc).
by kenschatz
12-15-2014 04:32 PM
142 1,992
ALS and FTD (1 Viewing)
Frontotemporal dementia (FTD) is a clinical syndrome caused by degeneration of the frontal lobe of the brain and may extend back to the temporal lobe.
by Libbylu
12-14-2014 07:17 PM
85 1,061
Healthcare professionals can meet and discuss current issues or gain insight and knowledge from other individuals affect by Lou Gehrig's disease.
by ggcanary
06-11-2013 01:47 PM
50 522
A place for CALS to remember their beloved PALS. Please use this forum to inform us of a loved one's passing.
by affected
Today 03:45 AM
541 12,683
Event Announcements (5 Viewing)
Post your event information for all to see. Feel free to post your questions and thoughts about an ALS fundraising event.
by MaxEidswick
10-08-2014 03:29 AM
324 2,460
This forum is for ALS related equipment sales. Any items that are no longer needed may be of great use to others affected by ALS.
by Daisy2182
Today 12:56 PM
681 2,054
PEG Feeding Tube
Percutaneous endoscopic gastrostomy (PEG), or feeding tube, is an essential element of care when ALS has progressed to the point where it interferes with a personís ability to swallow food and fluids. A feeding tube can reduce the stress and exhaustion of trying to swallow when swallowing becomes too difficult.
PEG feeding tubes supplement eating, or if swallowing is causing choking, may be used to replace eating. Ask your general questions about PEG tubes in this forum.
by gooseberry
Today 08:25 PM
140 1,598
Please add your tips, tricks or information regarding frequently asked questions regarding PEG feeding tubes to this forum.
by Janie H
02-22-2014 10:44 AM
4 21
Care of a PEG Tube (6 Viewing)
Discuss PEG care such as flushing, connecting and disconnecting as well as other general care and maintenance instructions.
by rosec
11-25-2013 06:32 PM
62 679
PEG Recipes (2 Viewing)
PEG feeding tube recipes can be shared and discussed in this forum.
by Uptown
01-06-2013 11:15 AM
15 202
Support for Caregivers of ALS (CALS)
This forum, inspired by the member jellycat, is for caregivers of people with ALS, both past and present.
This forum is for people that are currently providing caregiver support. People that have provided support can give support to those that are currently providing support.
by Snowman78
Today 06:30 PM
2,299 33,332
This forum is for people that have provided care to someone with ALS that they have since lost to ALS.
by Atsugi
Today 10:14 PM
150 2,388
Off Topic
This forum is for off topic conversations, stories, and other unrelated ALS topics of interest.
Other (13 Viewing)
Stories, other diseases, off topic discussions and general off topic conversations.
by Nikki J
Today 04:21 PM
596 12,029
Rants & Raves (5 Viewing)
by MaxEidswick
Yesterday 11:55 AM
232 5,104
Come For Tea (10 Viewing)
by skipper66
Yesterday 02:29 PM
20 17,804
Birthdays (3 Viewing)
by TGB1
02-11-2014 07:31 PM
29 1,137
by vickim
12-07-2013 04:07 PM
28 652
Primary Lateral Sclerosis Support Group
Our PLS forums are available to individuals affected by primary lateral sclerosis. The PLS support group is for PLS or disease related information, treatments, tips, caregiver and patient discussions.
Please use this support forum for questions, answers and discussions relating to Primary Lateral Sclerosis (PLS).
by olly
Today 06:45 PM
942 11,810
Progressive Bulbar Palsy Support Group
Please use this support forum for conversations relating to progressive bulbar palsy. Progressive bulbar palsy is a form of ALS that primarily affects both upper and lower motor neurons, but primarily motor neurons involved with controlling muscles in the neck, face, tongue and throat. Individuals diagnosed with PBP most frequently have difficulties with speech and swallowing.
Please use this forum for discussions about progressive bulbar palsy, PBP diagnosis, care, or to have any questions related to bulbar palsy answered.
by Janie H
12-13-2014 07:27 PM
200 1,755
Progressive Muscular Atrophy Support Group
Please use this support forum for conversations relating to progressive muscular atrophy (PMA). Patients with PMA often survive longer than patients with ALS and in some cases symptoms can be restricted to the arms or legs for a long time before spreading elsewhere in the body.
Please use this forum for discussions about progressive muscular atrophy, diagnosis, care, questions and help related to PMA.
by Charlie Breidenfield
02-03-2014 05:08 PM
61 573
Multifocal Motor Neuropathy Support Group
Multifocal motor neuropathy is a progressive muscle disorder characterized by muscle weakness in the hands and differences from one side of the body to the other; affecting men much more often than women. Symptoms also include muscle wasting, cramping, and involuntary contractions or twitching of the leg muscles. MMN is mistaken for amyotrophic laterial sclerosis (ALS, or Lou Gehrig's disease) but unlike ALS, it is treatable. Early accurate diagnosis provides patients the ability recover quickly.
Our MMN forums are available to individuals affected by multifocal motor neuropathy . The MMN support group is for MMN related information, treatments and tips.
by Music67
08-29-2014 10:21 PM
55 391
Fibromyalgia Support Group
This forum is intended for Fibromyalgia support, Fibromyalgia tips, sufferers of chronic fatigue and chronic pain.
Please discuss general topics about Fibromyalgia, Chronic Fatigue, or Chronic Pain.
by olly
01-03-2013 04:28 PM
67 591
Chat about whether your symptoms sound like Fibromyalgia, or discover Fibromyalgia symptoms.
by notme
12-29-2012 01:24 PM
28 240
Fibromyalgia is accompanied by chronic pain as a part of the syndrome and is usually widespread and the pain can occur anywhere at any time.
by MommyRissa
11-20-2012 10:48 PM
20 152
by lotusbri
11-26-2012 04:04 AM
32 362
Lyme Disease Support Group
This forum is intended for Lyme disease support and tips.
About Lyme Disease (2 Viewing)
Please discuss general topics about Lyme disease.
by SMP51
02-23-2014 04:41 PM
20 213
Information and discussions about Lyme diagnosis or being diagnosed with Lyme disease.
by MaxEidswick
05-19-2014 08:27 PM
15 269
Discuss your thoughts, help, support or advice for people that are diagnosed and living with Lyme disease.
by NotALS!
10-08-2010 11:15 PM
2 25
Chat about whether your symptoms sound like Lyme disease, Lyme like symptoms.
by Tokahfang
11-02-2012 07:57 AM
4 62
Website Feedback and New Members
Please use this section of the forum if you are a new user, we'd love to have the opportunity to say hello. Post a quick greeting in the "Welcome New Members" forum. If you have feeback about the website, the forums, or the content, please post it in the "Problems/Bugs" forum.
We are very pleased you have found our online support group. If you are new, please take a moment to register and then post a message saying Hi to the members of the site.
by Comoguy
11-15-2014 03:25 PM
337 4,460
If you encounter a problem with the forums please post it here and someone might be able to help. This forum is not monitored by any specific user.
by cheerleader
10-16-2014 05:12 PM
170 1,459

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