|Welcome to the ALS/MND Support Group Forums.|
If this is your first visit we would like to give you a warm welcome and thank you for taking the time to browse our ALS, MND and PLS disease forums. If you have any questions, would like to join, or have interest about these diseases we encourage you to take a minute to click here and register your account.
| ALS and MND Support Group |
Our support group is for ALL persons that have been affected by amyotrophic lateral sclerosis and motor neuron disease. This includes people afflicted with motor neuron disease, their friends, families, and loved ones. ALSforums is a community where you can ask questions, discuss concerns, voice your thoughts and experiences.
General Discussion About ALS/MND (75 Viewing)
Please use this forum for any general discussions about Lou Gehrig disease, and inquiries or questions you may have regarding ALS/MND.
Today 02:43 AM
Newly Diagnosed (11 Viewing)
Please use this forum for any discussions related to being newly diagnosed with ALS and MND. This may include questions about your diagnosis, or concerns with being newly diagnosed with ALS.
08-25-2016 05:09 PM
People With ALS - "PALS" (32 Viewing)
This forum was created to give individuals with ALS an opportunity to meet and discuss topics of interest. Individuals recently diagnosed with ALS can feel free to ask other members questions they may have.
08-25-2016 07:42 AM
Do I Have ALS? Is This ALS? (167 Viewing)
Have symptoms? Not sure if you have ALS, or what ALS is? Would you like to ask a general question about ALS symptoms? Please post all related questions to this forum.
Today 02:35 AM
A forum for military veterans and veteran affairs. Discuss topics related to veteran affairs, ALS, and for military veterans to discuss benefits.
08-18-2016 12:07 PM
ALS that runs in the family is known as familial ALS (or fALS). ALS that doesnít run in families is called sporadic ALS. Familial ALS is very rare with only about one in ten of all ALS cases being familial.
07-23-2016 07:12 AM
Stories of Hope (13 Viewing)
Please place your stories of hope, and reasons to look forward to the future in this forum. Much of what we read about ALS is sad and depressing, this forum is not the place for those threads.
Yesterday 09:27 AM
Tips, Tricks, and Gadgets (6 Viewing)
ALS Tips, Tricks, and Gadgets you have found useful for people affected by ALS/MND. Post items that you have invented, adapted, found or made usable for PALS.
Yesterday 12:35 PM
ALS Research News (9 Viewing)
Post and read about interesting ALS related research news. Keep everyone updated, post your updates about Lou Gehrig's disease and ALS research news.
Yesterday 03:56 PM
ALS Drug Trials (2 Viewing)
Modern medicine is making great leaps and bounds; if you have any information about recent drug trials, clinical trials, post the information here. Drug trials and clinical trials are conducted to allow safety and efficacy data to be collected for health interventions (e.g., drugs, devices, therapy protocols, etc).
08-25-2016 06:49 AM
Frontotemporal dementia (FTD) is a clinical syndrome caused by degeneration of the frontal lobe of the brain and may extend back to the temporal lobe.
08-17-2016 11:15 AM
In Memoriam/In Memory of (20 Viewing)
A place for CALS to remember their beloved PALS. Please use this forum to inform us of a loved one's passing.
Today 01:12 AM
Post your event information for all to see. Feel free to post your questions and thoughts about an ALS fundraising event.
07-26-2016 02:49 PM
Used ALS Equipment for Sale! (4 Viewing)
This forum is for ALS related equipment sales. Any items that are no longer needed may be of great use to others affected by ALS.
08-05-2016 10:45 PM
| Primary Lateral Sclerosis Support Group |
Our PLS forums are available to individuals affected by primary lateral sclerosis. The PLS support group is for PLS or disease related information, treatments, tips, caregiver and patient discussions.
General Discussion About PLS (18 Viewing)
Please use this support forum for questions, answers and discussions relating to Primary Lateral Sclerosis (PLS).
Yesterday 04:40 PM
| Support for Caregivers of ALS (CALS) |
This forum, inspired by the member jellycat, is for caregivers of people with ALS, both past and present.
Current Caregivers (CALS) (25 Viewing)
This forum is for people that are currently providing caregiver support. People that have provided support can give support to those that are currently providing support.
Today 02:42 AM
Past Caregivers (CALS) (2 Viewing)
This forum is for people that have provided care to someone with ALS that they have since lost to ALS.
08-05-2016 02:40 PM
| PEG Feeding Tube |
Percutaneous endoscopic gastrostomy (PEG), or feeding tube, is an essential element of care when ALS has progressed to the point where it interferes with a personís ability to swallow food and fluids. A feeding tube can reduce the stress and exhaustion of trying to swallow when swallowing becomes too difficult.
General Discussion About PEG's (4 Viewing)
PEG feeding tubes supplement eating, or if swallowing is causing choking, may be used to replace eating. Ask your general questions about PEG tubes in this forum.
08-03-2016 02:52 PM
Discuss PEG care such as flushing, connecting and disconnecting as well as other general care and maintenance instructions.
by Diane H
07-28-2016 08:59 PM
PEG feeding tube recipes can be shared and discussed in this forum.
06-16-2015 09:05 PM
| Progressive Bulbar Palsy Support Group |
Please use this support forum for conversations relating to progressive bulbar palsy. Progressive bulbar palsy is a form of ALS that primarily affects both upper and lower motor neurons, but primarily motor neurons involved with controlling muscles in the neck, face, tongue and throat. Individuals diagnosed with PBP most frequently have difficulties with speech and swallowing.
General Discussions About PBP (5 Viewing)
Please use this forum for discussions about progressive bulbar palsy, PBP diagnosis, care, or to have any questions related to bulbar palsy answered.
by Green Queen
05-25-2016 05:03 AM
| Progressive Muscular Atrophy Support Group |
Please use this support forum for conversations relating to progressive muscular atrophy (PMA). Patients with PMA often survive longer than patients with ALS and in some cases symptoms can be restricted to the arms or legs for a long time before spreading elsewhere in the body.
05-16-2016 04:12 AM
| Multifocal Motor Neuropathy Support Group |
Multifocal motor neuropathy is a progressive muscle disorder characterized by muscle weakness in the hands and differences from one side of the body to the other; affecting men much more often than women. Symptoms also include muscle wasting, cramping, and involuntary contractions or twitching of the leg muscles. MMN is mistaken for amyotrophic laterial sclerosis (ALS, or Lou Gehrig's disease) but unlike ALS, it is treatable. Early accurate diagnosis provides patients the ability recover quickly.
Our MMN forums are available to individuals affected by multifocal motor neuropathy . The MMN support group is for MMN related information, treatments and tips.
05-12-2016 10:45 AM
| Off Topic |
This forum is for off topic conversations, stories, and other unrelated ALS topics of interest.
Other (8 Viewing)
Stories, other diseases, off topic discussions and general off topic conversations.
08-24-2016 11:09 PM
Rants & Raves (2 Viewing)
Yesterday 01:12 PM
Comedy, Humour and Jokes (2 Viewing)
08-23-2016 03:06 AM
After 5 Forum Pub With PZ & Friends (2 Viewing)
08-19-2016 09:47 PM
by Green Queen
07-02-2016 08:06 AM
Come For Tea (3 Viewing)
05-19-2016 07:13 PM
Birthdays (4 Viewing)
06-13-2016 09:43 AM
Food, Recipes and Recreation (1 Viewing)
07-28-2016 01:36 PM
| Fibromyalgia Support Group |
This forum is intended for Fibromyalgia support, Fibromyalgia tips, sufferers of chronic fatigue and chronic pain.
Please discuss general topics about Fibromyalgia, Chronic Fatigue, or Chronic Pain.
01-03-2013 03:28 PM
Chat about whether your symptoms sound like Fibromyalgia, or discover Fibromyalgia symptoms.
12-29-2012 12:24 PM
Fibromyalgia is accompanied by chronic pain as a part of the syndrome and is usually widespread and the pain can occur anywhere at any time.
11-20-2012 09:48 PM
11-26-2012 03:04 AM
| Lyme Disease Support Group |
This forum is intended for Lyme disease support and tips.
Please discuss general topics about Lyme disease.
02-15-2016 01:20 PM
Information and discussions about Lyme diagnosis or being diagnosed with Lyme disease.
01-25-2016 11:38 AM
Discuss your thoughts, help, support or advice for people that are diagnosed and living with Lyme disease.
10-18-2015 10:04 PM
Chat about whether your symptoms sound like Lyme disease, Lyme like symptoms.
11-25-2015 08:23 PM
| Website Feedback and New Members |
Please use this section of the forum if you are a new user, we'd love to have the opportunity to say hello. Post a quick greeting in the "Welcome New Members" forum. If you have feeback about the website, the forums, or the content, please post it in the "Problems/Bugs" forum.
We are very pleased you have found our online support group. If you are new, please take a moment to register and then post a message saying Hi to the members of the site.
08-05-2016 08:13 AM
If you encounter a problem with the forums please post it here and someone might be able to help. This forum is not monitored by any specific user.
by Nikki J
Yesterday 06:01 AM
| ♥ Forum Supporters Private Area |
This forum is for Forum Supporters and long time contributors of the website. All discussions in this forum are private and not accessible to the general public, including Google.
This forum is a private area for forum supporters, moderators and long-time contributors. This forum is intended to be a safe place for more sensitive discussions that are not publicly displayed on the website or available for consumption by social media websites and search engines.
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