Blog

I had a strange experience when I went back to my local neurologist on Monday. He proceeded to tell me that he had read all the information that Dr. Appel sent him from my trip to Houston, and that Dr. Appel agreed with him that they neither one know what in the world is wrong with me. It was definitely another Twilight Zone moment.

My Friend, Please Click Here: [ame='http://www.youtube.com/watch?v=VdXT-v2hPUA']YouTube- Friends - Michael W Smith[/ame] Many, Many of my Friends are right here. Thank you for being there for me. Lorie- 'Friends are Friends Forever' :-D

I everyone i was dx with ALS in June 07.The ALS soceity asked me to be their ambassedor for there big walk on June 8th.I did not just want to show uo and make a speech and go home.So I am planning a bike trip from where i live Rockyford alberta to Calgary (110 Km).I will arrive in time to kick off Bettys run and walk on June 8th.My intention for my bike ride which is called Kevins Ride for Betty is to raise awareness for the walk and funds for the cause of ALS.I have a website under my name Kevin O'Keefe which can be accessed thru the walks website www.bettysr

The first week of my intersession has been great. I started stripping wallpaper off the walls of my boys' bedroom on Monday and have done nearly a wall a day. I have taken it slowly and alternated working on it and resting. And I have stopped working every day at 2:30 when it was time to go get my 9 year old. It will be ready to paint soon and they will have great blue walls instead of 1980's floral wallpaper. I also received my federal tax return today! Now I can order that computer and soon I will once again be online at home. I can't wait!

First of all, I would like to say that I like to Read, Read Poetry, and Write. (which I don't get to do much of). When I had just one of my bad days Friday when Tim begged me to take him out of his 'Suffering' and Torment and I had an argument with my Family. I came home Emotionally exhausted which is quite frequent. I just didn't think I could make it through the day. That night I was sitting at my Computer in a Daze.

Intersession is finally here! Now most of you have no idea what I am talking about. Our school is a CLC (continuous learning calendar) school, or in other words year round. School starts the first of August and we get three weeks off in October/November and three weeks off in March. This year we have to give up one week because of the 'Ice Storm of the Century' we had in December. We were out of school for a week because most of the nearly 500,000 people in town had no power. My house had no power for eight days.

I agree with the replies about the Politicians. God help them if we are interviewed by the local news. I will tell all about the lack of support from the Politicians. That is why I am their nightmare and I want go away. I have an idea I am cooking up that everyone can participate in. I will Blog it as soon as I have it together. Thanks Guys and Gals! Lorie

Occasionally I have a day where I wonder if I made the right choice when it came to getting a divorce. And then there are days like today when the answer is so clear, 'Yes!' that it smacks you in the face. My ex called me at school and the conversation went something like this: Ex: I talked with my lawyer and you need to draw up a will right away. When you die (our daughter) will not want to live with me and your family will fight me for custody of her. Me: Since we have 50/50 joint physical custody, I think you would automatically get the kids.

As you know I am an ALS Advocate. I have been a Nightmare for my State (AL) Senators and Rep. for over 1-/12 years. Until now the only response I have received from any of them is as follows: Senator: Richard Shelby-Always sends me letters. Senator: Jeff Sessions- Non Responsive House of Rep.: Jo Bonner- The one and only recent reply posted below. He is going to tell me about the H.R. 2295, the ALS Registry of 2007.

This morning at church when I turned around to pick up my purse after the benediction prayer, there was an envelope on my seat. I opened in and inside was a card and another envelope. The card was a beautiful Christian card with a message of encouragement and a beautiful illustration. There was a handwritten message on the card and it was signed 'Your Sister in Christ'. I waited to open the smaller envelope until I got out of church because the message in the card talked about 'this gift'. When I opened the envelope there were ten hundred dollar bills in it. I couldn't believe it.