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Quote from David Wilkerson 'WEDNESDAY, MARCH 31, 2010 WHAT DOES IT ALL MEAN? What does it all mean when prayers go unanswered? When hurts linger and God seems to be doing nothing in response to our faith? Often God is loving us more supremely at that time than ever before. The Word says, 'Whom the Lord loveth, he chasteneth.' A chastening of love takes precedence over every act of faith, over every prayer, over every promise. What I see as hurting me could be his loving me. It could be his gentle hand spanking me out of my stubbornness and pride.

It's been a very long time since I thought to write in my blog, and even longer since I actually did. As of late I've been doing lots of upgrades to the site, installing the latest versions, patch up security holes, overhauling the server, etc. The most notable addition is the advent of a complete backup server - this has already been a weight off my shoulders, allowing me to sleep just a touch more peacefully at night. I've also taken it upon myself to join twitter, you can follow along @alsforums.

Ive been gone so long with good reason as weve been to many,many appts and with work etc its taken all my time. However we now have the diagnosis that was found when Ed's symptoms seemed to be progressing too slowly for MND and some other symptoms were picked up on. Seems Ed has PSP,progressive supranuclear,palsy. Weve been advised to contact The parkinsons assoc as this comes under the heading of Parkinsons Plus. It has taken its toll on Ed with lots of trapsing around and now adjusting to all the info and probabilities etc re what to expect in the future.

Man, is it ever hard to answer this question. I have sat here now for 5 minutes trying to write something. I think I am scared of a real answer. I like it when people say to me 'hi stranger'. I know they mean long time no see, but my answer is always 'stranger than most' and I love it when they don't know what to do with that. I just laugh. So back to How am I doing? Big pause again. OK, my other answer to that question when people on the street ask... 'I am still upright and sucking air -- that's gotta be good.'

Great news... Our first volunteer is starting on Wednesday. She is a retired physio therapist! She met Tony last week and couldn't wait to start working on him and seeing how is body is. We are working with the hospital's Physio dept to ensure we are giving Tony the correct exercises and stretches. She will work 3 days a week with Tony ( to start) and then see how things go from there... I have 3 other volunteers who will come in the evening and afternoons to give him ROM in his easy boy and massages. I am overwhelmed by the support Tony is getting.

Dedicating a song to my sweet dad today... as his birthday approaches. This is my parents' song, 'Unchained Melody.' They danced to this song at their 25th wedding anniversary. They were amazing dancers and all eyes were on the happy couple. I love you, Dad. Thanks for singing this song to Mom even though you really can't carry a tune. Oh, my love my darling I've hungered for your touch a long lonely time and time goes by so slowly and time can do so much are you still mine? I need your love I need your love Godspeed your love to me Lonely rivers flow to the sea, to the sea

and I can't use the 'I am pregnant' excuse Wanda and I were watching tv in her bedroom. She gets up to do something in the washroom. I decide that time for a drink, so I make off for the kitchen. Coming out of the bedroom, at a speed that should be used outdoors, I went a little to wide and caught my big toe on the door frame to the washroom. It stays there, while my chair continued down the hall. My ankle then twisted and popped back onto the chair.

I've been gone for over a week. It been over 18 months (since before my son was born) since we had any kind of break. So we rented an RV, packed up the kids and TOOK OFF. We drove down to San Diego, had a glorious day at the zoo, stayed at some nifty RV parks, went to Joshua Tree State Park for a night and then went to Morro Bay State Park. It was just what the doctor ordered and even though it was pretty hard work to keep everything moving.. I loved not thinking about all this for a little awhile.

well it's been along time my friends. alot has happened and alot is happening. i am in a facility now,and i have to try and trust total strangers with my life. i lost my husand,best friend and i have noone to share my most inner fears or anything for that matter. i maybe see my kids twice a month. i dont have family close by,i didnt think i would be this alone. im not online very often but do check in,sorry it took so long

A funny thing .... I didn't check my phone messages when I got home from the hospital right away. There are volunteers phoning me!!!!!!!!! I guess the volunteer society put my ad in the paper and I have people calling willing to help! I can't believe it! I have been disappointed so many times with people not helping us that I am in shock that strangers would assist us. One lady is already working with an ALS patient so is experienced. Who would have thought.