still don't fit in any boxes.

Well back to Dr Dick... the ivig thing was deemed pointless,no improvement,only effect was just some skin issues.. spinal fluid was normal...but fasciculations, esp top half was described as florid..arms are still heavy and right hand weakness now as well as left...So he's killing a bit more time again,sending us for another emg/ncs and return in the future...ho hum eh?

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mh766's picture

I went thru repeated EMG's, brain MRI. My lyme test was neg but after reading so much about Symptoms stopping when treated for lyme, I got further intensive lyme titers and sure enough, tested positive. Now waiting for appt with infectious disease MD to try to get IV doxicycline. Have you had thorough lyme testing?

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