My husband was diagnosed with ALS 2 years ago. He can no longer stand and has lost most of his hands/arms function. He can still talk and eat, which we are very thankful for. He uses a Bi-Pap when lying in bed. He has a Permobil power chair and we have a Hoyer lift, that I use to transfer him. We use a full body sling with a commode cutout. We have a hospital bed. I am his primary caregiver.
We live in Seattle, WA, and have tried (unsuccessfully) to have an overnight getaway. I just can't seem to get him out of hotel beds, even with the lift. We end up using hotel staff to help. He then panics and wants to go home. Has anyone successfully been able to travel? We went on a Alaska cruise in September (when he could still stand a bit) and that worked out ok. We're going to try for another one in May, but now am afraid it won't work. We do rent a hospital bed for cruises. Suggestions?
Also, is there someone in the Seattle area that we be willing to talk with me? To help with questions?