MMN or ALS and the waiting game

I am waiting to begin IVIG treatment for Multifocal Motor Neuropathy. I have major atrophy in my right hand, muscle weakness in right leg and left hand and arm. I have fasciculations pretty much everywhere and,they just started in my lip. I'm wondering if anyone else with MMN has fasciculations in their lips. I hate that their doesnt seem to be much information out there... Any input?

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