Looking for recommendations NJ/NY area
Submitted by Janeta on Sat, 03/04/2017 - 10:20
Hello Everyone! After over a year, my Mom is finally diagnosed with ALS. I know I don't have to say here how the whole family feels like... But if anyone of you could recommend a clinic/center, I would really appreciate. This is the major decision at this point. We live in NJ. A neurologist is recommending Columbia Univ. in the city but i have doubts... I see that there is a clinic in N. Brunswick but would like to hear your input. Those of you who live in NJ/NY PLEASE, PLEASE let me know about your experience. Thank you in advance!
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Linda C
Sun, 04/09/2017 - 05:46
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Comfort
Janeta, First and foremost, I am sorry to hear about your moms diagnosis. My sweetheart was diagnosed 6 years ago and we are currently grateful for each day we have left. I can only share my experience with deciding on a care facility in hopes to help you. What ultimately worked for us is a local neurologist and an experienced clinic. We chose Hospital for Special care in New Britian CT. The travel time and all the clinical trial attempts are things we would not do again if we had to do it over. Our local ALS chapter has been a huge help. We have a very good relationship with them and I call in the event I need direction. Compassionate care out of MA is also a tremendous resource. Please feel free to reach out with any questions. I am here for you. Love and light to you and your family.
Linda Cavanaugh
860-287-5722
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