bkite's blog

Ventilator Use Question

Ventilator Use
Question: when should I start using the ventilator during the day?
Data: Dec 2016 FVC 60%, and TLV 2.9 liters
Subjective: the past month I had to start napping on the ventilator, not just at night. The past week I gave up eating a bowl of puree for lunch and dinner and just have it through the MIC-key, it was exhausting to eat it all. My two naps during the day have gone from one hour to two or more hours, despite using the ventilator.