D/C feeding tube


I am new to this forum.

I've been a caregiver for my mother, who has ALS and frontotemporal dementia, for a little over 7 years now. She has been immobile for many years now. She continued to react to different things, but she is no longer able to do so.

My family has come to the heartbreaking decision to discontinue her feeding tube. It is something that we never thought we'd have to do, but the doctors believe that she will continue living for years if we keep feeding her. It has come to the point where we are selfishly keeping her alive because we don't want her to go, but we know that she has a very poor quality of life.

My question is if anyone else has had to discontinue a feeding tube? I want to know if it is painful and what to expect. Thanks for the support and help.


David's picture

Hi AKS3, It's a very difficult time and I hope you're able to find some support to your questions. To help I would recommend the following: I would recommend posting your question in the ALS Forums here to get quicker responses from the community: http://www.alsforums.com/forum/general-discussion-about-als-mnd/ You can also use the search features to find existing topics on this same discussion: http://www.alsforums.com/forum/search.php

Add new comment

Limited HTML

  • Allowed HTML tags: <cite> <blockquote> <code> <ul> <ol> <li> <dl> <dt> <dd> <p> <br> <a> <ul> <li> <strong> <b>
  • Lines and paragraphs break automatically.

Plain text

  • Allowed HTML tags: <a> <em> <strong> <cite> <blockquote> <code> <ul> <ol> <li> <dl> <dt> <dd>
  • No HTML tags allowed.
  • Web page addresses and e-mail addresses turn into links automatically.
  • Lines and paragraphs break automatically.
This question is to prevent automated spam submissions.