International ALS/MND News HeadlinesKind Donor Thanks the Community
November 01, 2012 - Inspiration and Hope - [357 views]
A big thank you to the community comes from a recent donor, a donor which felt the need to both give back and to thank everyone involved. This gentlemen recognizes the great service each member, helpful contributor and moderator makes to the site.
May 14, 2012 - Awareness - [1058 views]
Diagnosed with Amyotrophic lateral sclerosis (ALS) more than eight years ago, East Garafraxa resident Al Pettit continues to defy the odds.
May 11, 2011 - Awareness - [735 views]
Al Pettit has made the local news once again for his fundraising event to raise money for research and awareness about ALS.Minister of Veterans Affairs Announces Improved Support for Veterans with ALS
October 15, 2010 - Awareness - [1889 views]
The Honourable Jean-Pierre Blackburn, Minister of Veterans Affairs and Minister of State (Agriculture), announced today that the Government of Canada has taken action to improve and speed up support for Veterans suffering from amyotrophic lateral sclerosis (ALS). He was joined by Pierre Poilievre, Member of Parliament for Nepean-Carleton, David Cameron, President and CEO of the ALS Society of Canada, and Veteran Mike Watson, who has led a courageous battle against ALS.Study Links Neurodegeneration in Head Trauma and ALS
August 20, 2010 - Research - [2033 views]
Nearly four years since researchers identified the mystery component of toxic protein aggregates in ALS and frontotemporal lobar degeneration (FTLD)-affected motor neurons as TAR DNA-binding protein (TDP-43), a new study has suggested the protein is a player in head injury too.Kinga Njilas wins Mike and Ike's Ante Up! Contest
May 27, 2010 - Awareness - [1029 views]
In an exciting race to the finish, Kinga Njilas has won Mike and Ike's Ante Up! contest - donating the $2,500 winnings, in cash and donated products, to the ALS Society of Canada for research into treatments and a cure for ALS.
March 06, 2010 - Awareness - [2508 views]
PBS has put together an insightful documentary of one man's battle with ALS and his considerations of a dignified suicide. Craig Ewert, 59, is dying, and in his own words says "There is no sensing in trying to deny that fact". Craig's ALS is rapidly deteriorating his body. While Craig is "not tired of living", Craig is "tired of the disease".Derek Walton is skydiving to raise money for research
August 13, 2009 - Events - [1418 views]
After brainstorming a bunch of ideas to help raise funds, Derek Walton has decided skydiving is the way to go.
August 10, 2009 - Awareness - [1297 views]
Four of Elizabeth Berry's paintings will be featured on the ALS Society of Canada's new cards to promote awareness of the fatal neurodegenerative disease also known as Lou Gehrig's disease. The internationally known Toronto artist's paintings feature cornflowers, the ALS Society of Canada's official emblem.Al Pettit makes the news!
May 06, 2009 - Awareness - [1799 views]
Our fearless moderator has made the news once again. Take a moment to read the Brampton Guardian's profile of Al Pettit.
July 03, 2007 - Events - [2100 views]
An Ontario local ALS Charity Golf Tournament to raise money for ALS Research!
February 14, 2007 - Research - [2948 views]
The Johns Hopkins University researchers have transplanted into damaged spinal cords human nerve stem cells that they say have survived, grown and in some cases connected with the rats own spinal cord cells.ALS Canada Wins Mercury Award
February 08, 2007 - Research - [2447 views]
The ALS Society of Canada has won a Silver Mercury Award for their publication titled "Research News" in the 20th Annual International MERCURY 2006/07 Awards competition.Todd Kelly Smith Pleads Not Guilty
January 20, 2007 - Awareness - [2470 views]
A former WDJX radio personality accused of stealing as much as $150,000, donated to battle a fatal disease, said he was innocent and turned down a plea offer in Jefferson Circuit Court January 20th, 2007.Fast-multiplying lawsuits may halt science research
January 03, 2007 - Research - [2542 views]
A team of scientists and lawyers warn in the journal Neurology that class-action lawsuits may significantly slow or halt science's ability to establish links between neurological illness and environmental factors produced by industry,Happy Holidays - New Year, New People, New Hope
December 28, 2006 - Inspiration and Hope - [2259 views]
ALSforums wishes everyone happy holidays and a happy new year. In our inaugural year we've amassed a very friendly community of people that help one another and offer support to new members. We'd like to thank all of our current members, and welcome all new members in 2007 - we eagerly await your visits!San Jose ALS fraud trial against physician
December 01, 2006 - Awareness - [2726 views]
Fraudulent Egg Harbor City doctor, Charlene C. DeMarco, 44, apparently administered stem cell injections to patients, defrauding them of large sums of money.
December 01, 2006 - Research - [2965 views]
TGen scientists working with the Muscular Dystrophy Association identified more than fifty genetic abnormalities in people with Amyotrophic Lateral Sclerosis.Motor Neurons from Stem Cells to Serve as Discovery Tools
November 22, 2006 - Therapy - [2362 views]
In a focused drug discovery effort funded by TREAT ALS, proprietary stem cells and gene changing technologies are to be combined in a search for targets for potential therapies for ALS.All Living Souls - an ALS inspired song
November 14, 2006 - Inspiration and Hope - [2472 views]
David Koren's uncle is living with ALS. Inspired by his uncle's determination and dedication to life he composed a song titled All Living Souls.Growth factor stimulates rapid extension of key motor neurons in brain
November 03, 2006 - Research - [3077 views]
A growth factor known to be important for the survival of many types of cells stimulates rapid extension of corticospinal motor neurons – critical brain cells that connect the cerebral cortex with the spinal cord and that die in motor neuron diseases like amyotrophic lateral sclerosis (ALS or Lou Gehrig's disease).Computer aided thought assistance may slow the progression of ALS
November 03, 2006 - Therapy - [2229 views]
Fundamental theories regarding consciousness, emotion and quality of life in sufferers of paralysis from Amyotrophic Lateral Sclerosis (Lou Gehrig's disease) are being challenged based on new research on brain-computer interaction.
October 24, 2006 - Drug Trials - [2595 views]
Avicena announced that patient enrollment for the first stage of its Phase II ALS clinical trial has been completed by the trial's lead investigator, Paul H. Gordon, M.D., of the Eleanor and Lou Gehrig MDA/ALS Research Center at Columbia University in New York.Parkinson's gene therapy may lead to similar ALS treatments
October 10, 2006 - Research - [2718 views]
A new gene therapy tested at Rush University Medical Center reduced Parkinson's disease symptoms by a remarkable 40 percent, researchers announced October 10th, 2006.Proteins linked - discovery brings new hope to ALS research
October 09, 2006 - Research - [2710 views]
An article published in the September 29th journal titled Science confirms a long suspected link between Lou Gehrig's disease (ALS) and frontotemporal dementia (FTD).
September 26, 2006 - Research - [2253 views]
The Institute at Oregon State University has discovered a new technique allowing researchers to watch, study and accurately measure key oxidants in animal cells. This is an important breakthrough that will dramatically speed research for Lou Gehrig's Disease.Life Fitness founder aims to raise $12 million for ALS research
September 03, 2006 - Awareness - [3119 views]
Augie Nieto, the man responsible for building a $550 million dollar company called Life Fitness was diagnosed with ALS last year. Augie now aims to raise over $12 million dollars for ALS research on behalf of the Muscular Dystrophy association.Girl with spinal muscular atrophy making progress in a clinical trial
September 03, 2006 - Drug Trials - [2681 views]
When Elizabeth Lee Hallam was born on Sept. 29, 2003, she was a textbook example of the perfect baby. But by 8 months of age, she was battling a fatal genetic disease her family had never heard of (spinal muscular atrophy). Despite the grave circumstances of her disease, Elizabeth is doing tremendoulsly well under a new therapy.Clarifying the role of inflammation in ALS
September 01, 2006 - Therapy - [2571 views]
The ALS Association is funding a continued line of investigation that will build on new evidence that an aspect of inflammation may actually help rather than harm in the progression of ALS.New Director of Research at the ALS Society of Canada
August 31, 2006 - Awareness - [2334 views]
Denise Figlewicz, PhD, will join the ALS Society of Canada on September 5, 2006 as Director of Research. The position of Director of Research is a newly created position for ALS Canada. Dr. Figlewicz’s research career has focused on mammalian nervous system development and pathology, specifically molecular genetic and cell approaches to investigate neuromuscular diseases such as ALS. She has been involved in the ALS research field since the 1980s.Couple wanted on stem-cell therapy fraud charges
August 28, 2006 - Awareness - [2118 views]
A Cape Town couple were accused of exploiting desperate patients by providing them with ampoules containing cord stem-cells from a registered laboratory. The couples clients were from across the world and suffered from neurological degenerative diseases such as multiple sclerosis, amyotrophic lateral sclerosis and cerebral palsy.Charity Benefit Country BBQ and Auction
August 10, 2006 - Events - [1971 views]
Saturday, September 16th, 2006 at 4:00pm in Nokesville, Virginia that ALS Association will be having a charity benefit, BBQ and silent auction in support of ALS Research.American Biogen buys into Canadian Amorfix Life
August 04, 2006 - Awareness - [1787 views]
Toronto-based Amorfix Life is joining the American-based Biogen of Cambridge, Massacheusettes and includes options to license the worldwide rights to Amorfix's technology. Amorfix develops and commercializes therapeutic treatments for Lou Gehrig's Disease (Amyotrophic Lateral Sclerosis).ALS breakthrough could be seen with new Isis drug trial
July 28, 2006 - Research - [3467 views]
Isis drug researchers have designed and tested a new molecular theraphy in animals that they hope will soon be a major breakthrough for ALS patients.New ALS gene therapy could slow progress of ALS
July 26, 2006 - Research Trials - [2992 views]
Researchers at the Center for Neurologic Study in Cleveland say that a buildup of toxic mutant proteins is what causes many degenerative neurologic diseases such as motor neuron disease (MND) and amyotrophic lateral sclerosis (ALS).American golfers help fight ALS
July 26, 2006 - Awareness - [1927 views]
Inspired by the unfortunate death of Tom Watson's long-time caddy Bruce Edwards who died of ALS, golfers can now support the fight against ALS by purchasing a hotdog at the end of nine holes.Timlin and friends to return for charity race
June 24, 2006 - Events - [2558 views]
Boston - Red Sox pitcher Mike Timlin returns to Hopkinton High School tomorrow morning as honorary guest for a charity race benefiting research into amyotrophic lateral sclerosis, which took his mother Sharon’s life four years ago.Mechanism identified for promising neurological drug to stop motor neuron damage
June 21, 2006 - Drug Trials - [2445 views]
Researchers at the San Francisco VA Medical Center have identified the mechanism by which minocycline, a medication currently being studied for the treatment of neurodegenerative diseases including Parkinson's disease and Huntington's disease, protects brain and nerve cells from damage.Stemcell therapy restores movement in paralyzed mice
June 20, 2006 - Research - [1986 views]
Experts are describing this latest research discovery as a momentous advance. Scientists have used embryonic stem cells to form new, functional nerve cell connections in formerly paralyzed mice. The outcome was that the paralyzed mice regained restored limb movement.Hopkins scientists use embryonic stem cells to regenerate new, completed, fully-working motor neuron circuits
June 20, 2006 - Research - [2017 views]
In a dramatic display of stem cells' potential for healing, a team of Johns Hopkins scientists reports that they've engineered new, completed, fully-working motor neuron circuits -- neurons stretching from spinal cord to target muscles -- in paralyzed adult animals.Japanese researchers succeed in converting ES cells into neural tissue
June 05, 2006 - Research - [2011 views]
Researchers at Japan's governmental research body Riken have succeeded in selectively converting ES cells into neural tissue by using human amniotic membrane.
June 03, 2006 - Awareness - [2005 views]
Borsellino died Saturday, May 27th after battling ALS for over a year and a half.
May 30, 2006 - Research - [2199 views]
The Columbia-based lab will seek to develop human cell based ALS assays and use stemcell derived motor neurons to screen drug candidates for ALS and spinal muscular atrophy in the hopes of find treatments for those suffering from motoron neuron diseases such as ALS.$15 Million Dollar Grant for ALS Research
May 30, 2006 - Research - [2008 views]
Claire Tow and family have donated $15 million to match a grant to Columbia University Medical School to study motor neurons and motor neuron disease - the reseearch is intended to solve the mystery of ALS.International Gene Search for Typical ALS
May 17, 2006 - Research - [1874 views]
Our friends at the Robert Packard Center for ALS Research at Johns Hopkins will undertake a gene search for sporadic ALS. Sporadic, or Typical ALS, accounts for approximately 90% of individuals living with ALS, whereas familial ALS, the form of ALS most researched, affects 10% of people with ALS.Avicena Phase III results limited - drug may reduce mortality rates
May 10, 2006 - Drug Trials - [2487 views]
Avicena said its potential drug for Lou Gehrig's disease (ALS-02) failed in trials to improve muscle strength and function. The drug did show a trend of reduced mortality. Further study will be needed with the hopes for eventual FDA approval should continued studies show treatment success.ALS patient fights for federal aid (USA)
May 10, 2006 - Awareness - [1912 views]
In a state with no ALS Association chapter and very few resources for patients and their families, Tammy Brown is leading the fight for an increase in governmental aid and medical research. Brown and her family are headed to Washington, DC to take part in the 2006 National ALS Advocacy Day and Public Policy Conference.Firefighters Help Strike Out Muscular Dystrophy
May 06, 2006 - Events - [1942 views]
Firefighters help strike out Muscular Dystrophy with their 2nd annual Bowl-a-Thon this upcoming Saturday, June 10th, 2006.
May 02, 2006 - Events - [2604 views]
Chapter will host the Strike Out! ALS Celebrity Benefit on Thursday, May 11th, 2006, from 5:30 until 8:30 PM at the Terrace Club at Jacobs Field.
May 02, 2006 - Awareness - [2257 views]
Marischal (Mop) Astwood, former PHC Zebras and Bermuda international footballer was diagnosed with ALS last February (2005). “All I can encourage others is not to take anything for granted as I have now found out,” a wheelchair confined Astwood told The Royal Gazette.Polyunsaturated Fat and Vitamin E May Help Reduce Risk of Developing ALS
April 28, 2006 - Research - [3000 views]
A diet high in polyunsaturated fat and vitamin E may reduce the risk of developing amyotrohpic lateral sclerosis by fifty percent. Polyunsaturated fats including Omega 3, found in some vegetable oils, and omega 6, found in fish and leafy green vegetables.
April 18, 2006 - Research - [10681 views]
A recent study using a mouse model by the Mount Sinai School of Medicine has shown that a high-caloric ketogenic diet may slow and/or prevent the progression of amyotrophic lateral sclerosis. The study appeared in the April 3rd, 2006 issue of BMC Neuroscience.CytRx Live Webcast April 24th
April 12, 2006 - Awareness - [1820 views]
CytRx Corporation announced that Steven Kriegsman, President and CEO of CytRx, is scheduled to present at the UBS Global Pharmaceuticals Conference on Monday, April 24, 2006 at 3:00 PM EST.
April 04, 2006 - Drug Trials - [1978 views]
CytRx has completed its enrollment in Phase IIa clinical trial for ALS; the data from this trial is expected to be released in the third quarter of 2006.
March 29, 2006 - Events - [2315 views]
Driving 4 Life is pleased to announce that PGA TOUR professional and local celebrity Brad Faxon will join a star studded line up of talent to kick off the Driving 4 Life Quest for a Cure Open at the Tournament Players Club of Boston in Norton, Massachusetts this May 8th. All Driving 4 Life charity golf tournaments benefit ALS TDF, a local nonprofit research center seeking a treatment and cure for ALS.Steve Baker Foundation - Fundraising Event
March 25, 2006 - Events - [2019 views]
One of the final requests Steve Baker made to his family before his death was that they start a foundation to battle Amyotrophic Lateral Sclerosis, or ALS (also known as Lou Gehrig's disease), the disease that claimed his life in October 2004.
March 25, 2006 - Awareness - [1926 views]
Barton Schwieger of Waterloo Iowa has passed away from Amyotrophic Lateral Sclerosis at the age of 64. Barton served as a senator in the 1970's and was diagnosed with Lou Gehrig's disease in 1998.Forbes Norris ALS/MDA Center Research Trial
March 18, 2006 - Research Trials - [2822 views]
The Forbes Norris ALS Research Center has started a new research trial and asks for ALS patients to submit a blood sample for genetic testing.
March 16, 2006 - Events - [1969 views]
The CYBL to raise funds for ALS research at the Cecil B. Day Neuromuscular Research Center at Massachusetts General Hospital. The event takes place March 18th, from 8AM to 8PM.Dysphagia or Trouble Swallowing Therapy
March 16, 2006 - Therapy - [4164 views]
Vitalstim can be an effective treatment to help people suffering from difficulty swallowing (Dysphagia). Vitalstim is offered at a number of hospitals in the UK, North America and abroad.New Drug with Potential to Treat Amyotrophic Lateral Sclerosis
March 15, 2006 - Research - [2329 views]
Based on findings in rats, researchers believe an antisense drug has potential to be an effective treatment for some familial types of ALS.
March 13, 2006 - Research - [2215 views]
Cognitive impairment (memory loss) appears to be common in ALS patients reports a study of 40 patients with amyotrophic lateral sclerosis (ALS).
March 11, 2006 - Research - [3007 views]
Exactly how ALS - Lou Gehrig's disease - damages motor neurons is one of medical science's lingering mysteries. At least six mishaps within cells appear to contribute to the death of the nerves that enable muscle movement, but nothing stands out as the key problem.Common Anticonvulsant Research - May Benefit ALS Patients
March 11, 2006 - Research - [1947 views]
Researchers have found that a common anticonvulsant drug helps slow the progression of dementia. This research may have positive results for people affect by ALS.Slow the progression of ALS
March 10, 2006 - Research - [3214 views]
There might be hope for people affected with Amyotrophic Lateral Sclerosis (Lou Gehrig's disease) because of two well studied drugs, thalidomide and its derivative lenalidomide.Phase II arimoclomol - Treatment of ALS
March 08, 2006 - Drug Trials - [2275 views]
Phase II clinical trial of a molecule drug candidate arimoclomol for the treatment of amyotrophic lateral sclerosis.Libertarian Advocate and Author Harry Browne Passes Away
March 01, 2006 - Awareness - [1806 views]
Harry Browne (born June 17, 1933), author and long-time spokesman for libertarian causes, died March 1st, 2006 of Lou Gehrig's disease. Harry Browne was a supporter of the Libertarian Party and the DownsizeDC Foundation.Diagnosis test possible - biomarkers found for ALS
February 25, 2006 - Research - [2223 views]
There is no cure for Amyotrophic lateral sclerosis (ALS), sometimes called Lou Gehrig's disease, and until now, there has been no diagnosis for it either.Rilutek Will Gain Competition
February 24, 2006 - Drug Trials - [2330 views]
Scientists at Mount Sinai School of Medicine have identified the first biomarkers for amyotrophic lateral sclerosis (ALS). These findings pave the way for a reliable test that will identify ALS sufferers at an earlier stage of the disease, and give more chances to companies developing disease-modifying drugs.German Pilot-Study of Thalidomide
December 01, 2005 - Drug Trials - [2239 views]
The primary aim of the drug trial is to determine whether treatment with thalidomide is safe and well tolerated in conjunction with riluzole and whether patients with ALS can tolerate daily doses of up to 400 mg.Fibromyalgia Forums
November 30, 1999 - Awareness - [261 views]
After much design and time, Fibromyalgia Forums has launched it's beta site. Please take a minute to contribute to the comments, threads, posts and to take time to review the site.